red shoes rock ottawa

Presented by

With the support of

Chapter 1: Library Rules

Chapter 2: My life with FASD

Chapter 3: Living a Full Life with FASD

Chapter 4: FASD Diagnosis in Canada

Chapter 5: FASD Diagnosis in Ottawa and surrounding area

Chapter 6: The experiences of diverse families

Chapter 7: Parenting across the lifespan

Chapter 8: Community & Peer Support from Interwoven Connections

Chapter 9: ABLE2’s Supports for People with Disabilities

Chapter 10: FASD, Occupational Therapy & Education

Chapter 11: Building a bridge between home and school

Chapter 12: FASD & Recreation

Chapter 13: Support for Mental Health and Challenging / Dangerous Behaviours

Chapter 14: Skill Building Programs

Chapter 15: Assistant Dogs for People with FASD

Chapter 16: Transitioning to Adulthood

Chapter 17: FASD & the Legal System

Chapter 18: Wills, Trusts & Guardianship

Chapter 19: Provincial Supports via Health Nexus sante

Chapter 20: CANADA FASD Research Network (CanFASD)

MY LIFE WITH FASD

Chapter 2

ALEX LALONDE​

Dog groomer

Business owner

FASD advocate

Person with FASD

Ask me about:

1. My experience with support groups for people ​with FASD.
   
2. My business.
   
3. My webinar for CanFASD.
   
4. Transitioning to adulthood.
   
5. Advice for parents / caregivers
   

Ask me about:

1. Who are the ALC Changemakers, and what ​do they do?
   
2. The importance of providing opportunities ​to people with FASD to share their ​experiences.
   
3. How yoga, mindfulness and sobriety help me ​in my daily life.
   
4. The Nervous System and why it’s important ​to regulate your own!
   

Ask me about:

1. Why it is necessary to use a ​multidisciplinary approach to diagnosing ​FASD
   
2. What we are learning from Canada’s National ​FASD Database
   
3. How early / late can FASD be diagnosed?
   
4. Research related to sex differences among ​people diagnosed with FASD.
   
5. Why is research about FASD important and ​how can we use the results?
   

Ask me about:

1. The referral and assessment process for ​CHEO’s FASD Diagnostic Clinic.
   
2. The role of an FASD Worker and FASD ​Diagnostic Clinic social worker
   
3. The age range of people seen at the clinic.
   
4. How do you confirm prenatal alcohol exposure ​for assessment.
   
5. Information clients / families need to ​provide for this assessment.
   

Je parle français !

Ask me about:

1. Being a parent to children with FASD.
   
2. Living as a queer, black woman.
   
3. Family diversity
   
4. What is intersectionality and how does it ​relate to my family.
   
5. My research related to supporting historically ​underserved communities (disabled, black, ​queer, francophone)
   

Ask me about:

1. The FASD Community Fund of Ottawa.
   
2. The history of FASD advocacy / support in ​Ottawa and what is still needed today.
   
3. Parenting people with FASD across the ​lifespan.
   
4. Issues facing senior caregivers of adults ​with FASD.
   

Ask me about:

1. “FASD and Me” resources for children, teens ​and their community networks
   
2. FASD resources, webinars and support groups
   
3. Supports for families formed through ​adoption, kinship and customary care, ​including peer support.
   
4. Joining our community as a professional
   

Je parle français !

Ask me about:

1. The Fetal Alcohol Resource Program (F.A.R.P.)
   
2. Our Eastern Ontario FASD Workers
   
3. ABLE2’s Matching Program and the importance ​of allyship.
   
4. REACH Legal services.
   
5. ABLE2’s Funding Brokerage financial ​management services.
   

Ask me about:

1. Occupational therapy (OT)
   
2. Strategies to support sensory differences in school, ​behavioural dysregulation, building trust and ​safety, and fostering participation in learning.
   
3. Available school supports & accommodations e.g. IEP ​(individual Education Plan and IPRC (Identification ​and Placement Review Committee)
   
4. The contribution of occupational therapy ​assessments with the FASD diagnostic process
   

*Occupational therapists are experienced at exploring what students ​need to do, want to do and are expected to do.

Ask me about:

1. What is a Special Education Committee and ​what do they do?
   
2. How to get schools and school boards invested ​in supporting students with FASD.
   
3. Ontario Bill 108 proposing mandatory FASD ​training for teachers, EA’s and ECE’s and for ​each school board to have a plan for their ​students with FASD.
   
4. Strategies we have found successful for ​students including the importance of recording ​accommodations in an IEP.
   

Ask me about:

1. What is a Special Education Committee and ​what do they do?
   
2. How to get schools and school boards invested ​in supporting students with FASD.
   
3. Ontario Bill 108 proposing mandatory FASD ​training for teachers, EA’s and ECE’s and for ​each school board to have a plan for their ​students with FASD.
   
4. Strategies we have found successful for ​students including the importance of recording ​accommodations in an IEP.
   

Ask me about:

1. Adapted sports in Ottawa and surroundings, ​including those inclusive of people with ​FASD.
   
2. Why fitness for everyone is important.
   
3. Ways to play sports more inclusive.
   
4. The Parasport Program.
   

Je parle français !

Ask me about:

1. Mental health for individuals with FASD and ​their family members
   
2. AFCCA (Aggression Toward Family/Caregivers ​in Childhood and Adolescence)
   
3. Non-violent Resistance (NVR)
   
4. Strategies and supports for families ​experiencing challenging and aggressive ​behaviours
   

Ask me about:

1. What is an EAL Coach? What is a FEEL ​instructor?
   
2. What benefits have you seen for people ​with FASD engaging in equine therapy?
   
3. Tell me about a typical session?
   
4. Why are horses particularly good at ​regulating people with FASD?
   

Ask me about:

1. What does Bolt4Kids offer?
   
2. Tell me about your staff.
   
3. How do you think your programs help young ​people with FASD?
   

Ask me about:

1. What was the process to get Petey?
   
2. What is Jordan’s Principle and how did it ​help you get funding for Petey?
   
3. How does Petey help your son?
   
4. Does Petey go to school with your son??
   

Ask me about:

1. Transition to adulthood
   
2. Sexuality and consent
   
3. Post secondary education, employment and ​housing supports and programs
   
4. ODSP (Ontario Disability Support Program) ​and Developmental Services Ontario (DSO)
   

Ask me about:

1. Why individuals with Neurodevelopmental ​Disabilities like FASD are vulnerable to legal ​issues.
   
2. Advice for individuals with FASD and their ​family members who come in contact with the ​police.
   
3. My role on Kids Brain Health Network’s Board ​and why this agency is important to me.
   
4. MedicAlert’s Connect Protect program and ​how it can assist people with FASD.
   

Ask me about:

1. Why you need a will; special considerations ​for families of loved ones with ​neurodevelopmental disabilities.
   
2. The importance of estate planning.
   
3. Guardianship and capacity assessments.
   
4. Trusts, including Henson Trusts / ​discretionary trusts.

Ask me about:

1. Ontario’s recently updated FASD website ​(fasdinfotsaf.ca).
   
2. Health Nexus’ 40+ FASD Family & Caregiver ​Support Groups across Ontario.
   
3. Upcoming FASD webinars and virtual ​trainings.
   
4. Our FASD training for service providers.
   
5. Health Nexus’ First Exposure program

Ask me about:

1. Highlights of current / recent FASD ​Research in Canada
   
2. CanFASD’s work on FASD prevention.
   
3. Why language matters when talking about ​FASD, and our recently updated Common ​Messaging Guide (EN & FR)
   
4. Canada’s need for a National FASD Strategy ​and how you can play a part.
   

Activities

10:30 a.m.

Registration and Resource Tables open.

11:00-11:30 a.m.

Speeches - meet the speakers

11:30-Noon

Networking;

Exploring of resource tables and grounds;

Family picnics (please bring your own)

Noon-1:00 p.m.

Bubble Performance by “Bubble Birthdays”.

Location: uncovered patio (nice weather); side covered patio ​(inclement weather)

Noon-1:30 p.m.

“Out to Play” and “Black in Nature” Activity Station for kids & teens. ​Location: uncovered patio (nice weather); Main Hall stage ​(inclement weather)

Sensory Activity Station brought to you by Ottawa Carleton District ​School Board Occupational Therapists.

Location: uncovered patio (nice weather); Atrium (inclement weather)

Paper Airplane Making Station.

Location: uncovered patio (nice weather); Main Hall (inclement ​weather)

Stencils, colouring, beading.

Location: uncovered patio (nice weather); Main Hall (inclement ​weather) 

Lego building station.

Location: uncovered patio (nice weather); Garden Room (inclement ​weather) 

Ongoing

Quiet Room operated by Psychotherapist and FASD Educator Tanya ​Eichler.

Location: Beach Room

Face painting

Location: Main Hall

Bring-your-own family picnic

Location: uncovered patio (nice weather); side covered patio ​(inclement weather)

FREE Refreshments

Water and juice in the Main Hall Canteen, donated by Metro Southgate

(Please note, if you will require more than one, please bring extras with ​you).

Special Red Shoes Rock cupcakes will be served around 1:00 p.m.! ​Vegan / gluten-free options available.

All natural freezies (no artificial flavours / colours) will be distributed ​during the activity portion.

Meet the speakers

It takes a village to plan an event like this.

We gratefully acknowledge the generous ​contributions of:

Speakers:

Cindy Peltier (Wabano), Shannon Butt, Alex Lalonde, Sabrina ​Stellmach, Wendy Katherine (Health Nexus), Ottawa City ​Councillor Jeff Leiper, and Tracy Moisan (Interwoven ​Connections & National Consortium on AFCCA).

Event Sponsors:

Kids Brain Health Network, the Wabano Centre for Aboriginal ​Health, CanFASD, and Queen’s University.

Community partners:

Society of Obstetricians and Gynaecologists of Canada (SOGC), ​Interwoven Connections, CHEO, Tanya Eichler Strategies ​Counselling & Consulting, Children’s Aid Society of Ottawa, ​ABLE2, Bolts4Kids, Healing Horses / Healing Hearts, Black in ​Nature, Out to Play, Experience Unik, Ottawa Carleton District ​School Board (OCDSB), Ottawa Catholic School Board (OCSB), ​Ability Hive, FASD Community Fund of Ottawa, Abilities Ottawa, ​Maude Champagne: Blooming with Neurosciences, Lafreniere ​Sanna Estate Law, Ottawa Police Services, and FASD One.

Human Library participants:

Jocelynn Cook, Janet Carioni, the Easy Family and their ​Assistance dog Petey, Tara Previl, Elspeth Ross, Josie Edwards, ​Liz Tompkins, Sophia Ierulllo, Joanne Leblanc, Lukeisha ​Andrews, Lara Purvis, Alice Audrain, Kathy Unsworth, Linda ​Sigouin, Thony Jean-Baptiste, Lori-Anne Bradley, Davina ​Mullaley, Natalie Sanna, Shai Rowan.

Health Nexus Team:

Wendy Katherine, Marine Delage de Luget, Haleema Siddiqi, ​Nancy Lockwood, Kensie Treacy, Yemidale Ajayi, and Liana De ​Luna.

Planning Committee Members:

The Health Nexus Team plus Davina Mullaley, France Bidal, ​Sandra Koch, Shannon Lane, Linda Sigouin, Tracy Moisan, Tanya ​Eichler, Elspeth Ross, Cindy Peltier, Ruby Alguire, Tara ​Cunningham, Ashley Hilliard, Donna Douglas, and Justine Kruz.

And thank you to our many amazing volunteers,

including many youth and young adults with FASD!

How to get here

ron kolbus centre AT BRITANNIA BEACH

102 Greenview Ave, Ottawa, ON K2B 8J8

Where to park